The Challenges of Living with a Rare Disorder - Professor Fransiska Malfait | English (EN)
The Challenges of Living With A Rare Disorder & Young Adulthood Q&A Session
The challenges and hopes of living with a rare disease | Ingrid Fevang (Full Version)
Challenges in Rare Disease Treatment
Ingrid's Story | The challenges and hopes of living with a rare disease
ERN eUROGEN Webinar 82: Living with a rare disorder Parent and patient experiences
Family Living with Rare Genetic Condition
The Challenges of Living with a Rare Type of EDS - Dr. Serwet Demirdas
Challenges of Diagnosing Rare Disorders
Stephanie Foster's Story: For Everyone Living With An Undiagnosed Disease
TSC Talks with Daniel Price "The Challenges of Living with a Rare Disease"
What is it like to have a rare disease?
Living with a rare disease
Rare in Common: The Challenges of Rare Disease Families
Challenges of Diagnosing Patients with Rare Diseases
Understanding the Challenges: Clinical Trials for Rare Diseases
Herausforderungen im Leben mit einer Seltenen Krankheit - Professor Fransiska Malfait | German (DE)
Emma's match: How connecting patients with ultra-rare disorders can uncover the roots of disease
Bringing new Hope to Families Living with Rare Disease
Challenges of Rare Diseases